Helpful Web Sites for Service Coordinators, Service Providers and Families
The following is a list of Web sites that service coordinators, service providers and families may find helpful regarding children with special needs and their families.
www.ideapractices.org
This site answers your questions about The Individuals with Disabilities Education Act.
www.state.nj.us/health/fhs/eiphome.htm
This is the Web site for the New Jersey Early Intervention System under the Department of Health and Senior Services
www.njeis.org
This Web site was created by the regional early intervention collaboratives in New Jersey. There is basic information on each collaborative, and the Transition Handbook is available here.
www.nectac.org
This is the site for the National Early Childhood Technical Assistance System. They provide training and technical assistance to Part C and 619 of Part B (3-5 year old program). This site provides information on many areas including evaluation/assessment, autism, service coordination, and inclusion. The next site is an extension of this one.
www.nectac.org/contact/ptccoord.asp
This site provides a list of the names, addresses and phone numbers of the Part C systems in each state. This could be useful when families are moving from NJ to another state.
www.spannj.org
This is the site for the Statewide Parent Advocacy Network (SPAN)
community.nj.com/cc/njparenttoparent/
This is the site for the NJ Statewide Parent to Parent system. It also has links to other sites.
www.iser.com/FSC-NJ.html
This is the site for the Family Support Center of New Jersey. It also has links to other sites.
www.circleofinclusion.org
This site provides information about current practices for including children (birth to age 8) with disabilities in early childhood settings.
www.familyvillage.wisc.edu
This site integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide services and support. It includes information on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, etc.
www.zerotothree.org
Information about infant development in the first three years.
www.njcosac.org
Web site for The New Jersey Center for Outreach & Services for the Autism Community.
www.rarediseases.org
Web site for the National Organization of Rare Diseases. Has a information on over 1,100 rare diseases. Also has extensive listings of support groups and organizations.
www.faculty.fairfield.edu/fleitas/contenta.html
Band-Aids and Blackboards
There is something for everyone at this up lifting site. It is packed with an incredible amount of personal stories, anecdotes, advice, and insight. This is how the site describes itself…
"This is a site about growing with medical problems… any ole type. Its goal is to help people understand what it's like, from the perspective of the children and teens who are doing just that. These kids have become experts at coping with problems that most of you have never heard of. They'd like you to know how they do it, and they hope that you'll be glad you came to visit." Content is divided into three categories: Kids, Teens and Adults.
Emergency Information Form for Children with Special Health Care Needs
If your child ever needs to be treated in an Emergency Room it is extremely important to have accurate and accessible information on hand, especially if you are not with your child. The American College of Emergency Physicians and The American Academy of Pediatrics have developed an Emergency Information Form for Children with Special Health Care Needs. Forms can be downloaded from the American College of Emergency Physicians web site: www.acep.org or you can contact Susan Freedman at SCHS (908)788-6399 and request a form be mailed to you.
www.nichcy.org
The National Center for Children and Youth with Disabilities (NICHCY) web site. They have an extensive listing of publications including pamphlets, book lists, and educational materials you can download for free. The site is easy to use. Favorite pick: Communicating with Your Child's School Through Letter Writing: This guide is rich in examples of the letters you might write to your child's school across the years. As for an evaluation, express concern about progress, request an IEP meeting, even praise the school's efforts! Learn more about what makes for an effective letter. 2nd Edition, 2002, 24 pages.
www.arcnj.org
You may have visited the ARC web site before, but if you haven't been there recently or didn't notice it, they have a fairly new publication series, The Education Advocate. The Education Advocate is an excellent source of quality, up to date information. It offers incredibly relevant monthly newsletters and fact sheets that aren't so long and detailed that you get lost in them. Topics such as, 'Preparing for your child's IEP meeting', 'Extended School Year', and 'Education Advocacy: Record Keeping' and 'Common Mistakes in Developing an IEP.' The series is authored by the ARC's Director of Education Advocacy, Elizabeth Shea, Esq.
Hunterdon Healthcare System’s Web site is provided for informational and educational purposes only and is not intended as medical advice nor is it intended to create any physician-patient relationship. This information should not substitute for a visit or a consultation with a health care provider.
These links are provided as a service. Hunterdon Healthcare System does not endorse any organization, program or service listed here, or their philosophies. Responsibility for the content of these sites rests solely with those organizations.